Genomic and Associated Clinical Data Sharing in the Aftermath of the Human Genome Project: A Missing Policy Link?

Date 10/15/18 12:00pm to 1:00pm
Presenter(s) Vasiliki Rahimzadeh, Department of Family Medicine, Department of Human Genetics, McGill University, Montreal, Quebec
Location 118 Keller Building

Since completing the human genome in 2003, translating genomic discoveries into the clinic has rested largely on the ability to share linked genomic and associated clinical data. The heightened sensitivity of linked data, however, places special technical and ethical-legal demands on institutional infrastructures to keep such data secure, yet simultaneously useful for both clinical and secondary research use. In this talk, Ms. Rahimzadeh will discuss the regulatory and scientific levers for 'responsible' data sharing practices in genomics, and how these levers provide a platform upon which governance in this field can build.


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